a fresh new hell

So the weeks have gone by and my dose of prednisone has gone down. Currently, I’m at 20 mg for the next 2 weeks. The dermatologist confirmed that I’ve been blistering underneath my previous blisters and decided to increase my CellCept dose. She’s anticipating the CellCept taking over soon, but not soon enough it seems. My scalp is not better. It’s still scaling, and not healing the way she’d like it to, so I’m supposed to put the Clobetasol on it twice a day without fail. The same, I might add, as my new sores on my back. She’s worried

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Today I went for my first haircut in 6 months. It wasn’t as bad as I thought it was going to be – mainly because I went to a cheap place that doesn’t wash your hair. They just spritz it down and go for it. So, yes, she could see that I had issues and I told her all about them. The hair on my crown is really pretty thin. With the bangs growing out, though, and pushing them back, I thought I could get away with my normal bob. What I forgot about was my new larger face. Holy

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Today was 30 mg day.  After two weeks of 35 mg, I am officially advancing on my goal toward zero.  Surprisingly, I haven’t had any itchy soreness…yet.  I am being cautiously optimistic.  Normally, though it doesn’t start until day two or three…cautiously optimistic. Some of the sores on my head aren’t there either – the ones on the back of my head – but the ones on top have been crusty all day.  Sometimes I wonder why  I haven’t gone nuts yet with my head.  It’s harder to reach the spots on my back, so it’s the biggest reason for

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Why is it in life that you must take one step forward and then, as a bonus, two steps back? I have been going to the gym again and am trying to get into a good routine. Today was uphill for 1.75 miles, downhill for .5 miles, and then a little flat for .25 miles. It felt really good to be moving and I vegged out with my music and read the tv. Two workouts in two days – tomorrow I take a day off, and then one more on Tuesday to round out my weekly three. The gym is

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I had a visit to my dermatologist this week.  My sores appear at 30 mg of Prednisone, so we’re going to two weeks at 35 mg, and hope the CellCept starts to become stronger in my system before backing off to 30 again.  Who knew these little buggers could be so persistent?  I also got a new form of topical steroid for my head – it’s an alcohol solution and burns like the devil, but it’s much easier to put on, and won’t make my hair look all greasy.  She also removed a mole that day.  Would one more small

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I have had two bouts of quick temper lately – one on Sunday, and one today.  My question is was I angry or did I snap at someone?  And, if I was angry or snapped at someone was it a side effect from the prednisone? I’m sure that I won’t know the answer.  Will I be watching my temper from now on – especially now that I’m aware?  Yes. Either way, it was me.  I could blame it on the drugs, hormones, and period but that’s not really what it’s about.  I need to center myself – take a deep

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Aloe helps.  Well, in my head I think it’s helped – or I’m not giving enough credit to 35mg of prednisone.  My back still has some sore spots today but they don’t feel raw, and I didn’t use aloe on my back.  I did use the steroid cream last night on those spots. I seem to be completely consumed by creams, meds, and aloe.  I certainly am for the purpose of this journal.  I’ve found no other resource online besides general question and answer boards.  More specifically, there was no information about Pemphigus during or while clearing up the first

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